SUPPORT

Support Sites for NMO

NMO is such a rare disease, and so new to so many in the medical professions that there is very little support for people with NMO. When I was diagnosed in 2010 not even my Neurologist knew much about it. All he said was that it was very common in Japan. He didn't know of any other medical specialists that knew about it other than a Japanese colleague! The disease (according to Wikipedia) may have been around since the 1870's. Now days (thanks to social media) so many support groups have emerged. I've listed the ones below (that I am aware of). If anyone knows of any more, please contact me and I'll add it to the list.

I set up 2 groups when I was well enough after being diagnosed, as I wanted to see who else and how many people in Australia had it. As well as find others to talk to for support for each other. Those sites on Facebook have become my life line and taught me so much, combined with all the other sites.