WHEELCHAIR WANDERER LOU
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SUPPORT

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Support Sites for NMO

NMO is such a rare disease, and so new to so many in the medical professions that there is very little support for people with NMO.  When I was diagnosed in 2010 not even my Neurologist knew much about it. All he said was that it was very common in Japan. He didn't know of any other medical specialists that knew about it other than a Japanese colleague!  The disease (according to Wikipedia) may have been around since the 1870's. Now days (thanks to social media) so many support groups have emerged. I've listed the ones below (that I am aware of). If anyone knows of any more, please contact me and I'll add it to the list.

I set up 2 groups when I was well enough after being diagnosed, as I wanted to see who else and how many people in Australia had it. As well as find others to talk to for support for each other. Those sites on Facebook have become my life line and taught me so much, combined with all the other sites.
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NMO & NMOSD Australia Support
​(Neuromyelitis Optica)​ 
​For Australians, and overseas NMO'ers

NMOSD/NMO Australia (for Aussies)
Neuromyelitis Optica Spectrum
 Disorder

Guthy Jackson
​Charitable Foundation

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​​Devic's Disease
​Neuromyelitis Optica
John Hopkins Neuromyelitis
Optica (NMO) Clinic 
NMO\Devics Disease Support South Africa
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My Devic's Family (NMO)
NMO Parental Support
NMO Weight Loss Support Group
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NMO India family
Nmo  Arab Patients
Devic's Disease (NMO)
               NMO UK
LINK TO UK SITE

Get in touch with me if you would like to suggest any other support sites

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    Drop me a note if you know of any more support groups, thanks .
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  • Home
  • BLOG
  • MY STORY
    • SIDE EFFECTS OF NMO
    • CHALLENGES WITH NMO
  • WHAT IS NMO
    • SUPPORT
    • TREATMENT
    • RESEARCH
  • OTHER SITES OF INTEREST
  • LIVING AS A PARAPLEGIC
    • Daily Exercise Routine
    • Transferring
    • Being Indepenent
  • PHOTOGRAPHY
    • iPHONE PHOTOS
    • JAPANESE GARDEN PHOTOS
    • JAPANESE GARDEN PAGE TWO
    • NATIVE GARDEN PHOTOS
    • SECOND PAGE NATIVE GARDEN PHOTOGRAPHS
  • Dogs I Meet Along the Way
  • YOUTUBE VIDEOS
  • NEW ZEALAND CRUISE
    • CABIN PHOTOS >
      • INSIDE THE SHIP
      • DECK PHOTOS
      • FOOD
      • AUCKLAND PHOTOS
      • TAURANGA
      • GISBORNE
      • WELLINGTON
      • AKAROA
      • DUNEDIN
      • FIORDLAND NATIONAL PARK
      • PHOTOS OF US & OTHERS
      • AMAZING SUNSETS
      • WATER
      • VIDEO CLIPS