OMG have had the most shocking flu for the past two weeks. There is nothing like illness to get your weight to start to go down, appetite to reduce, and patterns to start changing again.
I lost my appetite for 2 weeks which was great in so many ways, however am starting to get it back. I'm in the process now of eating more fruit and more smaller meals, plus plenty of vegetables especially at night time, with a good dose of protein so that my body can repair.
It's making a difference as I feel more comfortable in my wheelchair and in my clothes. Will keep you posted. as it's a slow process. :)
Iv'e had bronchitis for the past couple of weeks, which has put everything into chaos. Not only do I have the side effects of the bug, but it really effects my nerves on my spinal cord, thus sending my NMOSD disease into chaos.
Some examples of that are that my legs just go totally straight out and very stiff. It was almost impossible to bend my left leg.
I haven't been eating much, bit have been craving Chinese yum cha steamed dumplings! I never eat them!!!! I've still eaten the same BREAKFAST every day, lunch I was ordering as I had no energy to make anything, and my taste buds were all over the place, so I had no craving for any of the food I normally eat. Dumplings and sweet and sour soup with vegetables was all I craved.
Dinner was just pasta or steamed veggies and an apple.
Of course loads of water, if I could. I had no taste for water initially when I got sick. Now I'm craving Coke Zero (I never drink soft drinks??), and am back onto 2.5 - 3 litres of water.
As you can see I haven't been diligent with my posts, and it's early days. Without making excuses, I can say that I've had incredible fatigue with the disease. To give you an example, on Sunday all I needed to do was send a simple email, and cognitively I was stuffed. I think I sent it about 10 times and kept getting 'mail delivery failed'. I couldn't believe it! That's how dumb my brain was, and how fatigued my brain was, thus making it near impossible to organise anything. Yesterday my body was so fatigued I couldn't even make a salad. I just slept all day.
The great thing is that I've cancelled my delivery accounts and deleted the apps on my phone. Thus making it much harder for me to just order food in 2 minutes, and have it here within half an hour. It made me organise my time this morning (as I also had energy today), and make salad for the week for lunches. I actually ate one today! Wooohooo.....I just tip one container into a bowl, and add 1 small tin of tuna in spring water. And half of 1 of those 40 second cooking cups of brown rice, oran alternative into the salad.
Breakfast is easy as it's my usual porridge combo.
Dinners will be either half a chicken skinless breast, grilled. Or fish, or my favourite.....squid which a just cut up so it forms rings, and prawns done on the grill. Then I add veggies such as brussel sprouts, green beans, asparagus, carrots or sweet potato, all steamed in the microwave. With the veggies I cut them up and put them in plastic containers and into the fridge as well. Then I can decide which ones I feel like eating each night, and it takes 2 seconds to put them into a steaming container for the microwave.
I have decided that I can't eat bread nor have it in the unit as I do 2 things with it. I will toast 2 slices for lunch, have it with 100g of protein, and a big handful of baby spinach leaves or rocket. Then when I get the munchies in the afternoon or am fatigued, I just grab it to eat it. Not great for nutrition or the waist line.
I have also been focusing on these words -
QUALITY produce and hence QUALITY food.
QUANTITY meaning don't eat to much. Remember that my stomach is the size of my fist, so don't eat more than that.
CLEAN FOOD meaning grilled, steamed, not fried or oily food. The reason being that my body can't tolerate oily food and in fact it usually rejects it. Or it makes me feel incredible ill and tired. Not to mention bloated the next morning, with the possibility of the bowels now working properly as there is no fibre.
FIBRE which comes in veggies generally. This assists with my bowels in the morning.
WATER I always drink at least 2.5- 3 litres of water a day. This is important for my catheter, but brilliant for bowels to work.
I know I have talked about bowels a bit, and apologise if that makes you squeamish, but this process happens once a day for me when I get up in the morning, so it's important. As you can train your bowels when you are a paraplegic.
I THINK I'M STARTING TO FINALLY GET ON BOARD........Let's see how I go!
Week two started off well with a few hiccups, but overall I'm starting to get into it now. I'm just so frustrated as I can't exercise like I used to when healthy and able bodied. I do exercise for at least 2 hours a day, but it's so that my body can function daily, rather than weight loss. I met a few people on diet's and they were a great inspiration. I know what I need to do, I just have to do it!
BREAKFAST - Is always the porridge combo as per shown in week one. That always carries me through to lunch time, which ranges between 12.30 to 1.30.
LUNCHES - I had a couple of left over, already made salads, from week one. I was very proud of myself as I went out on the Friday, and took the salad with me. I wasn't tempted to have anything else, which is hard when you go to see a movie, and it's everywhere you look. Especially Ben & Jerry's ice cream with chocolate sauce and all the trimmings.
As for the rest of the week......the Saturday after going out I was exhausted, fatigued from the day before, and the disease really nailed me. When I talk about fatigue, I don't mean tired and I want to sleep. It's like you've just done a massive gym workout and your body is fatigued, but you don't want to sleep. I get up after my carer has been here as I don't feel like lying on the bed. But I sit at the computer and play solitaire or games as I'm fatigued, and my mind is unable to work any further than that of a zombie.
So I ordered a burger, chips and onion rings. WTF? I never used to do this let alone eat food like this. The great thing about this was that I fell asleep in seconds (very normal with the disease as by then I can sometimes need to sleep), and woke up later coughing. This usually means that my stomach is unable to process it due to the disease, as the nerve that starts the process of the stomach starting to break the food down, doesn't work. I've had this issue since I was about 18/19...all due to the disease. So when I wake up coughing, it means that there is nowhere for it to go, other than up. I'm sorry this is so yuckyyyy...however it was great for it to happen, because I won't eat it any more.
The the rest of the week was toast, tuna, baby spinach leaves and a tiny amount of mayonnaise. It was the easiest for me, and the healthiest.
DINNER - Was steamed vegetables done in the microwave. I always have brussel sprouts as I love them. They are cut up and put into a container, as are carrots and beans. It just makes it easy to take a little bit out of each and put them into a microwave container, and steam for a few minutes.
I ether grilled half a chicken breast (skin off), or a small fillet steak. I'm fussy as I won't eat any other cut of steak, so I don't have it very often. I'm not a great fish eater as I hate the smell in the unit, it seems to linger for hours. However I'm craving it at the moment, crumbed, with lemon.
My Mum also makes the best spaghetti and freezes it in portions. So I'll often have that, and add steamed veggies with it.
SNACKS - on organic tofu I'd cut up into rectangles and grilled, as well as ryvita's.
I'm having much trouble with my bowels this week, no reason other than it has a mind of it's own!!!! So the last 3 days have been very disappointing. That means much more salad and fibre, as well as water to sought it out again.
I've been in a wheelchair since January 2010 due to the disease I have, NMO. I've stacked on so much weight, and have decided it's time to lose it. By putting it out there, there will be nowhere to hide! It's time!