Iv'e had bronchitis for the past couple of weeks, which has put everything into chaos. Not only do I have the side effects of the bug, but it really effects my nerves on my spinal cord, thus sending my NMOSD disease into chaos.
Some examples of that are that my legs just go totally straight out and very stiff. It was almost impossible to bend my left leg.
I haven't been eating much, bit have been craving Chinese yum cha steamed dumplings! I never eat them!!!! I've still eaten the same BREAKFAST every day, lunch I was ordering as I had no energy to make anything, and my taste buds were all over the place, so I had no craving for any of the food I normally eat. Dumplings and sweet and sour soup with vegetables was all I craved.
Dinner was just pasta or steamed veggies and an apple.
Of course loads of water, if I could. I had no taste for water initially when I got sick. Now I'm craving Coke Zero (I never drink soft drinks??), and am back onto 2.5 - 3 litres of water.
As you can see I haven't been diligent with my posts, and it's early days. Without making excuses, I can say that I've had incredible fatigue with the disease. To give you an example, on Sunday all I needed to do was send a simple email, and cognitively I was stuffed. I think I sent it about 10 times and kept getting 'mail delivery failed'. I couldn't believe it! That's how dumb my brain was, and how fatigued my brain was, thus making it near impossible to organise anything. Yesterday my body was so fatigued I couldn't even make a salad. I just slept all day.
The great thing is that I've cancelled my delivery accounts and deleted the apps on my phone. Thus making it much harder for me to just order food in 2 minutes, and have it here within half an hour. It made me organise my time this morning (as I also had energy today), and make salad for the week for lunches. I actually ate one today! Wooohooo.....I just tip one container into a bowl, and add 1 small tin of tuna in spring water. And half of 1 of those 40 second cooking cups of brown rice, oran alternative into the salad.
Breakfast is easy as it's my usual porridge combo.
Dinners will be either half a chicken skinless breast, grilled. Or fish, or my favourite.....squid which a just cut up so it forms rings, and prawns done on the grill. Then I add veggies such as brussel sprouts, green beans, asparagus, carrots or sweet potato, all steamed in the microwave. With the veggies I cut them up and put them in plastic containers and into the fridge as well. Then I can decide which ones I feel like eating each night, and it takes 2 seconds to put them into a steaming container for the microwave.
I have decided that I can't eat bread nor have it in the unit as I do 2 things with it. I will toast 2 slices for lunch, have it with 100g of protein, and a big handful of baby spinach leaves or rocket. Then when I get the munchies in the afternoon or am fatigued, I just grab it to eat it. Not great for nutrition or the waist line.
I have also been focusing on these words -
QUALITY produce and hence QUALITY food.
QUANTITY meaning don't eat to much. Remember that my stomach is the size of my fist, so don't eat more than that.
CLEAN FOOD meaning grilled, steamed, not fried or oily food. The reason being that my body can't tolerate oily food and in fact it usually rejects it. Or it makes me feel incredible ill and tired. Not to mention bloated the next morning, with the possibility of the bowels now working properly as there is no fibre.
FIBRE which comes in veggies generally. This assists with my bowels in the morning.
WATER I always drink at least 2.5- 3 litres of water a day. This is important for my catheter, but brilliant for bowels to work.
I know I have talked about bowels a bit, and apologise if that makes you squeamish, but this process happens once a day for me when I get up in the morning, so it's important. As you can train your bowels when you are a paraplegic.
I THINK I'M STARTING TO FINALLY GET ON BOARD........Let's see how I go!
Week two started off well with a few hiccups, but overall I'm starting to get into it now. I'm just so frustrated as I can't exercise like I used to when healthy and able bodied. I do exercise for at least 2 hours a day, but it's so that my body can function daily, rather than weight loss. I met a few people on diet's and they were a great inspiration. I know what I need to do, I just have to do it!
BREAKFAST - Is always the porridge combo as per shown in week one. That always carries me through to lunch time, which ranges between 12.30 to 1.30.
LUNCHES - I had a couple of left over, already made salads, from week one. I was very proud of myself as I went out on the Friday, and took the salad with me. I wasn't tempted to have anything else, which is hard when you go to see a movie, and it's everywhere you look. Especially Ben & Jerry's ice cream with chocolate sauce and all the trimmings.
As for the rest of the week......the Saturday after going out I was exhausted, fatigued from the day before, and the disease really nailed me. When I talk about fatigue, I don't mean tired and I want to sleep. It's like you've just done a massive gym workout and your body is fatigued, but you don't want to sleep. I get up after my carer has been here as I don't feel like lying on the bed. But I sit at the computer and play solitaire or games as I'm fatigued, and my mind is unable to work any further than that of a zombie.
So I ordered a burger, chips and onion rings. WTF? I never used to do this let alone eat food like this. The great thing about this was that I fell asleep in seconds (very normal with the disease as by then I can sometimes need to sleep), and woke up later coughing. This usually means that my stomach is unable to process it due to the disease, as the nerve that starts the process of the stomach starting to break the food down, doesn't work. I've had this issue since I was about 18/19...all due to the disease. So when I wake up coughing, it means that there is nowhere for it to go, other than up. I'm sorry this is so yuckyyyy...however it was great for it to happen, because I won't eat it any more.
The the rest of the week was toast, tuna, baby spinach leaves and a tiny amount of mayonnaise. It was the easiest for me, and the healthiest.
DINNER - Was steamed vegetables done in the microwave. I always have brussel sprouts as I love them. They are cut up and put into a container, as are carrots and beans. It just makes it easy to take a little bit out of each and put them into a microwave container, and steam for a few minutes.
I ether grilled half a chicken breast (skin off), or a small fillet steak. I'm fussy as I won't eat any other cut of steak, so I don't have it very often. I'm not a great fish eater as I hate the smell in the unit, it seems to linger for hours. However I'm craving it at the moment, crumbed, with lemon.
My Mum also makes the best spaghetti and freezes it in portions. So I'll often have that, and add steamed veggies with it.
SNACKS - on organic tofu I'd cut up into rectangles and grilled, as well as ryvita's.
I'm having much trouble with my bowels this week, no reason other than it has a mind of it's own!!!! So the last 3 days have been very disappointing. That means much more salad and fibre, as well as water to sought it out again.
I started the WL blog whilst at the hospital last week, on Tuesday 9th May. That was not a great idea, here is why.
First of all I was feeling very fat and uncomfortable in my body and in the wheelchair. The second reason being that it takes about 4.5 hours for the drug I have for the disease, to go in to my body once it's set up, so I get restless. I also have an injection of 150 mls of steroids (as part of the treatment), which makes me very hungry for carbs and junk afterwards. The drug also plays havoc with my body for about the next three days, so I'm usually off hyper the next day due to the steroids. Then I crash the second day and am exhausted from two days of going out, and long days. I am always busy the day after the treatment, actually like a super energiser bunny! The third day I am still struggling as my legs become very stiff and spasm straight out all the time, they spasm which is very painful. It is almost impossible to bend them. It also upsets my bowel routine by either giving me the runs, or/and constipating me. It takes a lot of planning and training to get a paraplegic bowel and body to work properly, preventing issues during the day or middle of the night.
I then had a birthday, as well as Mum's birthday, which meant food, food and more food. We went out to a great restaurant for lunch. I said to myself that I'd just eat fish and salad, however that didn't work. The idea at this restaurant is to order several plates, and share food. I did say to everyone at the table I just wanted fish and salad. I got my wish, but everyone else ate it as well, which left me eating other food, as I only had tiny portions of my request.
However with the first week being a right off, it did get my mind in order, which then got me in order after the weekend. I was home on the Monday and had lots of energy, so I made a fabulous salad, cut up all my veggies and popped them in plastic containers, so they were ready to be steamed at night. I also cut up chicken breasts ready for grilling, and made a low fat butter chicken, and froze it in the right portions.
On the Tuesday I went locally to have my hair cut, and hadn't had time to have lunch as it was over the period of lunch time. I went to a very healthy cafe near by and bought a selection of healthy salads. BUT I WAS SO HUNGRY BY THEN, so I ordered a hamburger from an app on my phone, which was delivered the minute after I got home.
IMAGINE THE SELF TALK THE FOLLOWING DAY!!! Not happy about the first week, however I did get myself organised for the following week, and feel I have started to change habits, as my mind is now in the right frame, and starting to get of some bad habits that have appeared.
I can say that I always have the same food for breakfast every day. Here is a photo of that.
The photograph of the salad is what I also have regularly for lunch. I prepare it once a week, then put it in plastic containers (like the ones you get when you have takeaway Chinese etc). This makes it easy to grab out of the fridge and then add the tin of tuna. It takes all of 2 minutes to get lunch ready.